Friday, April 22, 2011

Disney Part 1

I recently returned from a trip to Walt Disney World with my family; Mom, dad, sisters, brother-in-law and my almost 6 month old nephew. It was a trip I have been looking forward to for over a month. And then a few days before we left, it hit. The dizziness, headaches, fatigue. I experienced the same thing last year at the Spina Bifida Conference in Cincinnati, and realized it was extreme dehydration. So for the next few days leading up to my departure to the Happiest Place on Earth,  I drank water like it was liquid gold.  Didn't help. I felt even worse when we arrived in Disney. The whole week is kind of fuzzy to me. I went to bed almost every night with the chills, and woke up every morning soaked with sweat. Headaches all day, and I didn't have the energy to do much.

Don't get me wrong, I did enjoy myself. I went on rides and saw shows and enjoyed being with my family and seeing my 5.5 month old nephew enjoying himself (which really just consisted of him being entranced with the lights on the monorail, the ceiling fans in the restaurants, and those sticks that light up when u swing them around).  But I did come home feeling a little disappointed. Especially when the dehydration turned out to be a major UTI. Thanks Spina Bifida. You're one thing I can count on always being there. So when I was finally home, I had one of my rare and fleeting "why me" moments. But I have my moment and then I move on. No point in wallowing in it, it's not going to get you anywhere but depressionville.  Then I'd be really stuck.

So thankfully my UTI is now under control, and I am patiently awaiting my next disney trip.  and I would really appreciate it if my Spina Bifida would behave itself next time.

Thursday, April 21, 2011


Welcome to my blog! Here you'll find my sad, angry, funny, smartass and otherwise random thoughts about being a young woman with Spina Bifida. Enjoy!